Purpose

Simone wanted to create a beautiful picture book explaining what Hirschsprung’s disease is and how it hasn’t stopped her son Oscar from doing the things he loves to do. 

While in hospital waiting for Oscar’s surgery, his parents would read to him every day. They dreamed of reading a book to him about what he was going through and that explained Hirschsprung’s disease.

Oscar’s parents wanted to create a book that can be shared to raise awareness about and educate people on Hirschsprung’s disease. A book that is uplifting and shows how a child with Hirschsprung’s disease can do all the same things other children can do. 

This book is for …

  • Parents who have a child with Hirschsprung's disease, who wish to share more about it with their children and loved ones. 
  • Friends and family who have a loved one with Hirschsprung's disease, who wish to learn more. 
  • Children who have Hirschsprung’s Disease to feel seen and heard … a book about them!
  • Schools, libraries, hospitals and communities that wish to spread the word and raise awareness about Hirschsprung's disease. 

This book is is for EVERYONE to learn that children with Hirschsprung’s disease are UNSTOPPABLE!